Profile

Bartha Maria Knoppers, PhD (Comparative Medical Law), is a Distinguished James McGill Professor Emerita, Canada Research Chair in Law and Medicine Tier 1 (2001-2024) and Founding Director of the Centre of Genomics and Policy of the Faculty of Medicine at McGill University. She was the Chair of the Ethics and Governance Committee of the International Cancer Genome Consortium (2009-2017). She was Chair of the Ethics Advisory Panel of WADA (2015- 2021) and the Co-Chair of the Regulatory and Ethics Workstream of the Global Alliance for Genomics and Health (2013-2019). In 2015-2016, she was a member of the Drafting Group for the Recommendation of the OECD Council on Health Data Governance and gave the Galton Lecture in November 2017. She holds four Doctorates Honoris Causa and is a Fellow of the American Association for the Advancement of Science (AAAS), the Hastings Center (bioethics), the Canadian Academy Health Sciences (CAHS), and the Royal Society of Canada. She is also an Officer of the Order of Canada and of Quebec and was awarded the 2019 Henry G. Friesen International Prize in Health Research, the Till and McCulloch Award for science policy (2020) and, was appointed to the International Commission on the Clinical Use of Human Germline Genome Editing.